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Paediatric Palliative Care




Paediatric palliative care can be an emotive clinical issue. Although some issues in palliative care are similar in adults and children, there are several striking differences. These differences pose distinctive challenges to nurses who care for children with life-threatening conditions and their families. This chapter provides an overview of the issues involved in paediatric palliative care and the strategies that can be used in a comprehensive approach to care.


Contents include

  • Introduction
  • Features of paediatric palliative care
    • Life-threatening illnesses in children
    • Perceived barriers to paediatric palliative care
    • Palliative care needs of children and their families
    • Communicating with children about death and dying
  • Paediatric symptom management
    • General comments
    • Pain management
  • Loss, grief and bereavement
    • The effect on the family
    • The effect on the siblings
    • The effect on children
  • Conclusion
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Author / Editor Biographies

RN, BN, PDipACN and PhD.
Sharon De Graves has a nursing career in paediatric oncology that spans over 15 years. She is currently the Nurse Unit Manager of the Children's Cancer Centre, Monash Children's Hospital. Sharon is also the Chair of the Australian and New Zealand Childhood Haematology and Oncology Nurses Group (ANZCHOG). Sharon is experienced in the development of services and standards of practice for children and adolescents with cancer. Her PhD explored the experience of childhood cancer following relapse, and elicited an understanding of the uncertainty at this time and the relationship between hope and fe...
BNurs(Hons), GCert TerTeach, PhD, FRCNA
Leanne Monterosso holds a joint appointment with the University of Notre Dame Australia (Fremantle) and St John of God Hospital Murdoch as the Chair of Nursing (Clinical Nursing). Leanne is also Adjunct Professor in the School of Nursing and Midwifery at Edith Cowan University. She has undertaken extensive research in the areas of paediatric cancer and palliative care, with a particular focus on the needs of children requiring palliative care and their families. Leanne's research has provided the basis for the development paediatric palliative care guidelines, which have been used by the Weste...

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